Ty is also 11 months old today so it only seems fitting I post an update.
At 11 months Ty is 19lb 4oz and 54cm long. We have been monitoring his growth monthly since meeting the specialist and despite being petite still I am very pleased with his progress. He is now the same weight Mav was at 12 months. Still on the smaller side of average but average none the less.
He now has 11 foods we can call safe; sweet potatoes, butternut squash, plums, pears, lamb, quinoa, white potato, carrots, broccoli, banana, and apple. We retried his soy formula and are now using that to supplement as well for convienence (aka freedom). We have two food trials we are working on, black beans and avocado both are looking very promising.
Unfortunately we had to remove peaches from his list of safes as they seemed to be causing some chronic symptoms. He was having increased reflux, excessive hiccups, stomach pains and poor sleep. All of which improved since stoping. I hope to re try the peaches again in the spring or summer and see if we can get them back. It may be ambitious but fingers crossed. He still has three trigger foods (rice, oats, milk) that cause acute reactions.
I have been focusing on finger foods so that Ty can practice his pincher grasp as well as chewing. Now that he has a more varied diet it finally allows us to work on those developmental milestones and catch up.
Cheecha puffs and freeze dried fruit have made life seem more normal, we have a quick easy no prep snack that I can carry in my diaper bag or purse.
This little guy seriously loves food so much it breaks my heart at times. We have been making such good progress tho and I have to remind myself of that at times. Some days the emotional toll hits me. Hits me hard. I would love to just be "normal" and feed him as I please. To go out somewhere and grab a bite and offer him a bite without the stress of a potential reaction. Even just doing the food trials is nerve wracking enough to want to hide away from it all. I worry excessively and watch the clock countdown to the two and three hour mark post meal before I dare breathe. Even trying different variations of a safe food is nerve wracking, you never know if the protein component is the same in each.
I have been reading blog posts and stories all day, taking a glimpse into the lives of the other FPIES families. We are in a good place, I know that. There are many others more complicated with more triggers and less safes. It helps level my head a little but most of all it makes me feel for those families. Together we are getting through this, supporting one another, sharing recipes, tips, resources and sometimes just words of encouragement.
Going forward the plan with Ty is to see his specialist as well as an allergist in December. I had expressed concern about Ty having IgE allergies, nuts especially since I developed that allergy while pregnant with him so the plan is to have him tested. Our specialist was ok with me taking the lead in planning our foods but did want us to try chicken so that will be coming up at some point. I return to work next month so the food trials will lessen as we will only have weekends to do them. That will be frustrating but we should have a good list of safes by then and it will give me time to play around with recipes and give his gut a little time to relax.
Breastfeeding will continue as long as it needs to... More on that later tho.
1 comment:
Having a food allergy/sensitivity is so stressful, but thankfully you are getting to a good place with a nice list of safe foods. We are still so scared to reintroduce citrus to Abi after her horrible reactions when she was younger, so I know some of the fear you have. Keep strong and give lots of love and kisses to those handsome boys!
Post a Comment